Yesterday evening when I returned to the hospital I was told that Brin had another falling out. I couldn't believe it!!! I had spent all day with her and left when they started changing some of her dressing to run to Target and that is when it happened. She had been wonderful all day long. I just don't understand what is going on. After our visit the ICU Dr stopped me to tell me that the echo was scheduled for in the morning (today) and depending on the findings they were going to schedule ANOTHER cath to see if she would need to go back in for surgery. They are looking for some narrowing in her pulmonary arteries. This would mean surgery right away. This emotional roller coaster needs to come to an end eventually, right??? My expectations were to be in and out in about a week and no new surgeries until around three years of age. In this case we are looking at 4 open heart surgeries before the age of 5. Peace be with me.
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